Chronic Illness as a Source of Happiness: Paradox or perfectly normal?

S. Hoppe

Abstract


In this paper I analyse the relation between happiness and chronic illness from the perspective of medical anthropology and disability studies. By looking at the disability paradox I deconstruct society’s view of people with a disability. I argue that the disability paradox is problematic as it ignores the views of people with a disability. Moreover, such a paradox reinforces the idea that living with a chronic illness or disability is a devastating experience and that happiness and disability are mutally exclusive realities. Based on empiric examples of people who suffer from Multiple Sclerosis I demonstrate that people with a chronic illness can experience happiness in spite of illness, but also as a consequence of it.

 


Keywords


chronic illness;disability; happiness; disability paradox; Multiple Sclerosis

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References


Albrecht, G. L., & Devlieger, P. J. (1999). The disability paradox: High quality of life against all odds. Social Science & Medicine, 48(8), 977-988. doi:10.1016/S0277-9536(98)00411-0

Black, R. S., & Pretes, L. (2007). Victims and victors: Representation of physical disability on the silver screen. Research & Practice for Persons with Severe Disabilities, 32(1), 66-83.

Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167-182. doi:10.1111/1467-9566.ep11339939

Charmaz, K. (1995). The body, identity, and self: Adapting to impairment. Sociological Quarterly, 36(4), 657-680.

Charmaz, K. (1983). Loss of self: A fundamental form of suffering in the chronically ill. Sociology of Health & Illness, 5(2), 168-195. doi:10.1111/1467-9566.ep10491512

Charmaz, K. (1991). Good days, bad days : The self in chronic illness and time. New Brunswick, N.J.: Rutgers University Press.

Diener, E. (2000). Subjective well-being - the science of happiness and a proposal for a national index. American Psychologist, 55(1), 34-43.

Dunn, D. S., & Brody, C. (2008). Defining the good life following acquired physical disability. Rehabilitation Psychology, 53(4), 413-425. doi:10.1037/a0013749

Duval, M. L. (1984). Psychosocial metaphors of physical distress among MS patients. Social Science & Medicine, 19(6), 635-638. doi:10.1016/0277-9536(84)90230-2

Jacoby, A., Snape, D., & Baker, G. A. (2005). Epilepsy and social identity: The stigma of a chronic neurological disorder. Lancet Neurology, 4(3), 171-178. doi:10.1016/S1474-4422(05)01014-8

Koch, T. (2000). The illusion of paradox: Commentary on Albrecht, G.L. and Devlieger, P.J. (1998). the disability paradox: High quality of life against all odds. social science & medicine 48, 977–988. Social Science & Medicine, 50(6), 757-759. doi:10.1016/S0277-9536(99)00385-8

Kool, J. (2010). Ach arm, genegeerd lichaam. Medische Antropologie, 22(2), 253-261.

Kutner, J.S., Nowels, D.E., Kassner, C.T., Houser, J., Bryant, L. & Main, D.S. Confirmation of the disability paradox among hospice patients: Preservation of quality of life despite physical ailments and psychosocial concerns. Palliative Supportive Care, 1(3), 231-237. doi:10.1017/S1478951503030281

Marinic, M., & Brkljacic, T. (2008). Love over gold-the correlation of happiness level with some life satisfaction factors between persons with and without physical disability. Journal of Developmental and Physical Disabilities, 20(6), 527-540. doi:10.1007/s10882-008-9115-7

Mauss, I. B., Tamir, M., Anderson, C. L., & Savino, N. S. (2011). Can seeking happiness make people unhappy? paradoxical effects of valuing happiness. Emotion, 11(4), 807-815. doi:10.1037/a0022010

McCabe, M. P., & McKern, S. (2002). Quality of life and multiple sclerosis: Comparison between people with multiple sclerosis and people from the general population. Journal of Clinical Psychology in Medical Settings, 9(4), 287-295.

Mehnert, T., Krauss, H. H., Nadler, R., & Boyd, M. (1990). Correlates of life satisfaction in those with disabling conditions. Rehabilitation Psychology, 35(1), 3-17. doi:10.1037/h0079046

Meyers, A. R. (2000). From function to felicitude: Physical disability and the search for happiness in health services research. American Journal of Mental Retardation, 105(5), 342-351.

Nozick, R. (1989). Happiness. The examined life. philosophical meditations (pp. 99-117)

Oliver, M. (1990). The politics of disablement. New York: Palgrave Macmillan.

Pakenham, K. I., & Fleming, M. (2011). Relations between acceptance of multiple sclerosis and positive and negative adjustments. Psychology & Health, 26(10), 1292-1309. doi:10.1080/08870446.2010.517838

Rose, N. (1999). Powers of Freedom Reframing Political Thought. Cambridge: Cambridge University Press.

Ryan, K., Rapport, L., Sherman, T., Hanks, R., Lisak, R., & Khan, O. (2007). Predictors of subjective well-being among individuals with multiple sclerosis. The Clinical Neuropsychologist, 21(2), 239-262. doi:10.1080/13854040600582460

Shakespeare, T. (1994). Cultural representation of disabled people: Dustbins for disavowal? Disability & Society, 9(3), 283-299. doi:10.1080/09687599466780341

Shakespeare, T. (1996) "The body line controversy": a new direction for Disability Studies? Paper presented at Hull Disability Studies Seminar.

Stewart, D. C., & Sullivan, T. J. (1982). Illness behavior and the sick role in chronic disease: The case of multiple sclerosis. Social Science & Medicine, 16(15), 1397-1404. doi:10.1016/0277-9536(82)90134-4

Sunderland, N., Catalano, T., & Kendall, E. (2009). Missing discourses: Concepts of joy and happiness in disability. Disability & Society, 24(6), 703-714. doi:10.1080/09687590903160175

Susman, J. (1994). Disability, stigma and deviance. Social Science & Medicine, 38(1), 15-22. doi:10.1016/0277-9536(94)90295-X

Thompson, A. J., & Hobart, J. C.Multiple sclerosis: Assessment of disability and disability scales. Journal of Neurology, 245(4), 189-196. doi:10.1007/s004150050204

Thorne, S., & Paterson, B. (1998). Shifting images of chronic illness. Image: The Journal of Nursing Scholarship, 30(2), 173-178. doi:10.1111/j.1547-5069.1998.tb01275.x

Ubel, P. A., Loewenstein, G., Schwarz, N., & Smith, D. (2005). Misimagining the unimaginable: The disability paradox and health care decision making. Health Psychology, 24(4), S57-S62. doi:10.1037/0278-6133.24.4.S57

Uguz, F., Akpinar, Z., Ozkan, I., & Tokgoz, S. (2008). Mood and anxiety disorders in patients with multiple sclerosis. International Journal of Psychiatry in Clinical Practice, 12(1), 19-24. doi:10.1080/13651500701330825

Ware, N.C. (1999). Toward a model of social course in chronic illness: The example of chronic fatigue syndrome. Culture, Medicine & Psychiatry 23: 303-31.

Williams, G. (2001). Theorizing disability. In G. L. Albrecht, K. D. Seligman & M. Bury (Eds.), Handbook of disability studies. California/London/New Delhi: SAGE Publications.




DOI: http://dx.doi.org/10.5195/hcs.2013.138

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