Misconceptions of the Deaf: Giving voice to the voiceless

D. R. Terry, Q. Lê, H. B. Nguyen, C. Malatzky

Abstract


 

The Deaf usually do not see themselves as having a disability; however, discourses and social stereotyping continue to portray the Deaf rather negatively. These discourses may lead to misconceptions, prejudice and possibly discrimination. A study was conducted to identify the challenges members of the Deaf community experience accessing quality health care in a small Island state of Australia. Using a qualitative approach, semi-structured interviews and focus groups were conducted with service providers and the Deaf community. Audist discourses of deafness as deficiency, disability and disease remain dominant in contemporary society and are inconsistency with the Deaf community’s own perception of their reality. Despite the dominant constructions of deafness and their affect on the Deaf’s experience of health service provision, many Deaf have developed skills, confidence and resilience to live in the hearing world. The Deaf were pushing back on discourses that construct deafness as a disempowering impairment.


Keywords


Health; medical; Deaf; misconceptions; assumptions

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References


Alvesson, M., & Karreman, D. (2000). Varieties of discourse: On the study of organizations through discourse analysis. Human Relations, 53(9), 1125-1149.

Aronson, J. (1994). A pragmatic view of thematic analysis. The qualitative report, 2(1), 1-3.

Australian Bureau of Statistics. (2012, 2 November 2011).

National Regional Profile 2006-2010. from http://www.ausstats.abs.gov.au/ausstats/nrpmaps.nsf/NEW+GmapPages/national+regional+profile?opendocument

Balch, G. I., & Mertens, D. M. (1999). Focus group design and group dynamics: Lessons from deaf and hard of hearing participants. American Journal of Evaluation, 20(2), 265-277.

Barnett, S., Klein, J. D., Q Jr, P. R., Samar, V., Schlehofer, D., Starr, M., . . . Pearson, T. A. (2011). Community participatory research with deaf sign language users to identify health inequities. American Journal of Public Health, 101(12).

Batterbury, S. C. E., Ladd, P., & Gulliver, M. (2007). Sign Language Peoples as Indigenous Minorities: Implications for Research Policy. Environment and Planning A, 39(12), 2899-2915. doi: http://www.envplan.com/epa/epa_current.html

Blommaert, J., & Bulcaen, C. (2000). Critical Discourse Analysis. Annual review of Anthropology, 29, 447-466.

Bodenheimer, T., Chen, E., & Bennett, H. D. (2009). Confronting the growing burden of chronic disease: can the US health care workforce do the job? Health affairs, 28(1), 64-74.

Boyatzis, R. E. (1998). Transforming qualitative information: Thematic analysis and code development: Sage Publications.

Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77-101.

Davidson, F., Cave, M., Reedman, R., Briffa, D., & Dark, F. (2012). Dialectical behavioral therapy informed treatment with Deaf mental health consumers: an Australian pilot program. Australasian Psychiatry, 20(5), 425-428.

Deaf Australia Inc. (2014). Deaf Australia Inc., 31 January, from www.deafau.org.au

Denman, L. (2007). Enhancing the accessibility of public mental health services in Queensland to meet the needs of deaf people from an Indigenous Australian or culturally and linguistically diverse background. Australasian Psychiatry, 15, S85-S89. doi: 10.1080/10398560701701262

Department of Health. (2005). Mental Health and Deafness: Towards Equity and Access (pp. 36). London. National Institute for Mental Health in England.

Dunmire, P. L. (2011). Projecting the future through political discourse (Vol. 41). Amsterdam: John Benjamin Publishing Co.

Fairclough, N. (1992). Discourse and social change. Cambridge, UK: Polity Press.

Fairclough, N., & Wodak, R. (1997). Critical Discourse Analysis. In T. A. Van Dijk (Ed.), Discourse as social interaction (pp. 258-284). London: Sage.

Fereday, J., & Muir-Cochrane, E. (2008). Demonstrating rigor using thematic analysis: A hybrid approach of inductive and deductive coding and theme development. International Journal of Qualitative Methods, 5(1), 80-92.

Foss, K. A. (2014). Constructing Hearing Loss or “Deaf Gain?” Voice, Agency, and Identity in Television's Representations of d/Deafness. Critical Studies in Media Communication, 31(5), 426-447. doi: 10.1080/15295036.2014.968603

Graybill, P., Aggas, J., Dean, R. K., Demers, S., Finigan, E. G., & Pollard, R. (2010). A Community-Participatory Approach to Adapting Survey Items for Deaf Individuals and American Sign Language. Field Methods, 22(4), 429-448. doi: 10.1177/1525822x10379201

Harmer, L. (1999). Health care delivery and deaf people: practice, problems, and recommendations for change. Journal of deaf studies and deaf education, 4(2), 73-110.

Hyde, M., & Power, D. (1992). The Use of Australian Sign Language by Deaf People. Sign Language Studies, 75, 167-182.

Johnston, T. (2004). W(h)ither the Deaf community? Population, genetics and the future of Australian Sign Language. American Annals of the Deaf, 148(5), 358-375.

Jones, C. P. (2000). Levels of racism: a theoretic framework and a gardener's tale. American Journal of Public Health, 90(8), 1212-1215. doi: 10.2105/ajph.90.8.1212

Ladd, P. (2005). Deafhood: a concept stressing possibilities, not deficits. Scandinavian Journal of Public Health, 33(Suppl 66), 12-17.

Ladd, P., & Lane, H. L. (2013). Deaf Ethnicity, Deafhood, and Their Relationship. Sign Language Studies, 13(4), 565-579.

Lane, H. L. (2002). Do Deaf People Have a Disability? Sign Language Studies, 2(4), 356-379.

McCloskey, R. (2008). A guide to discourse analysis. Nurse researcher, 16(1), 24.

McDermott, R., & Varenne, H. (1995). Culture as disability. Anthropology & Education Quarterly, 26(3), 324-348.

McKee, R. L. (2008). The Construction of Deaf Children as Marginal Bilinguals in the Mainstream. International Journal of Bilingual Education and Bilingualism, 11(5), 519-540.

Moore, J. D., & Pollack, M. E. (1992). A problem for RST: The need for multi-level discourse analysis. Computational linguistics, 18(4), 537-544.

Napier, J., & Kidd, M. R. (2013). English literacy as a barrier to health care information for deaf people who use Auslan. Australian Family Physician, 42(12), 896-899.

Nilsson, A., Turner, G., Sheikh, H., & Dean, R. (2013). A prescription for change: report on EU healthcare provision for Deaf sign language users. from http://www.medisignsproject.eu/download/report.pdf

Oliver, M. (1990). The politics of disablement. London: Macmillan Education.

Padden, C., & Humphries, T. (2009). Inside deaf culture. Boston, MA: Harvard University Press.

Sheppard, K., & Badger, T. (2010). The lived experience of depression among culturally Deaf adults. Journal of psychiatric and mental health nursing, 17(9), 783-789. doi: 10.1111/j.1365-2850.2010.01606.x

Steinberg, A. G., Barnett, S., Meador, H. E., Wiggins, E. A., & Zazove, P. (2006). Health care system accessibility. Journal of general internal medicine, 21(3), 260-266.

Steinberg, A. G., Sullivan, V. J., & Loew, R. C. (1998). Cultural and linguistic barriers to mental health service access: the deaf consumer's perspective. American Journal of Psychiatry, 155(7), 982-984.

Van Dijk, T. A. (1996). Discourse, power and access. In C. R. Caldas-Coulthard & M. Coulthard (Eds.), Texts and practices: Readings in Critical Discourse Analysis (pp. 84-104). London: Routledge.

Van Dijk, T. A. (2001). Critical Discourse Analysis. In D. Schiffrin, D. Tannen & H. E. Hamilton (Eds.), The handbook of discourse analysis (pp. 352-371). Oxford: Blackwell Publishing.

Van Dijk, T. A. (2003). The Discourse-Knowledge Interface. In G. Weiss & R. Wodak (Eds.), Critical Discourse Dnalysis: Theory and interdisciplinarity (pp. 85-109). New York: Palgrave Macmillan.

Wodak, R. (2002). Aspects of Critical Discourse Analysis. Zeitschrift für Angewandte Linguistik, 36, 5-31.

Wodak, R., & Meyer, M. (2009). Critical Discourse Analysis: Hisotry, agenda, theory and methodology. In R. Wodak & M. Meyer (Eds.), Methods of critical discourse analysis (2nd ed., pp. 1-33). London: Sage Publications.




DOI: https://doi.org/10.5195/hcs.2017.211

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